Home » Alone in My Universe: Struggling with an Orphan Disease in an Unsympathetic World by Wayne Brown
Alone in My Universe: Struggling with an Orphan Disease in an Unsympathetic World Wayne Brown

Alone in My Universe: Struggling with an Orphan Disease in an Unsympathetic World

Wayne Brown

Published
ISBN :
Kindle Edition
344 pages
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 About the Book 

Battling a chronic disease can often be a lonely and frustrating ordeal. It doesn’t have to be. Alone in My Universe, compiled by Wayne Brown, presents a series of writings from patients suffering from acromegaly. Based on actual personalMoreBattling a chronic disease can often be a lonely and frustrating ordeal. It doesn’t have to be. Alone in My Universe, compiled by Wayne Brown, presents a series of writings from patients suffering from acromegaly. Based on actual personal experiences, these narratives provide a primer of understanding for others dealing with this chronic, debilitating disease that affects many of the body’s systems.This collaborative effort, written by real people touched by acromegaly, attempts to raise awareness of this low-profile disease. Each patient tells his or her story as it relates to the disease and its complications. Topics include the following:Handling pre-diagnosis frustrationDealing with fears of medical treatment and surgeryManaging family issues and work issuesTalking with childrenManaging negative energyCoping with good and bad daysLiving life each dayWith sympathy, empathy, and mutual support, Alone in the Universe shares the heartfelt stories of those suffering from acromegaly to show others that they are not alone in their battle.